Fishing for Patients

The past week I’ve been doing two very different activities: vacationing in the shadow of the Tetons, and attending the National Hemophilia Foundation annual conference in Dallas, where we continued to recruit bleeding disorders patients, caregivers, nurses, and social workers. Do they have anything in common?  I think so. On vacation, several of us spent… Continue Reading

Compensation for Patients

Clients often ask us, “What should I pay patients and caregivers for participating in market research or health economics & outcomes research? Can we give a donation instead?” We’ve completed over 600 US patient recruits across dozens of rare patient disease areas, and we’ve learned a bit. We generally recommend paying rare patients about $100… Continue Reading

It is nice to have a special day to remind us to give thanks. Otherwise we would go about business as usual, and take wonderful things for granted. Thanksgiving is a great time to reconnect with friends and family. One of the many things I’d like to give special thanks for this year are those… Continue Reading

Happy New Year

I heard a radio DJ wonder how late in the year can you still say, “Happy New Year.” I don’t know the answer, but it made me think, if I want to say it to you, I’d better do it now! We’ve closed the books on a successful 2015 and I wanted to share some… Continue Reading

We are proud to announce a new patient panel, Eosinophilic Esophagitis. We have 19 patients and 82 caregivers. Eosinophilic Esophagitis), or EoE, is a chronic immune system disease, only identified recently. Patients have a buildup in the lining of their esophagus, which can cause difficulty swallowing. Clinicaltrials.gov lists 100 clinical trials for EoE. Some of… Continue Reading

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