Why sign up with RPV?

  • Provide your input to improve products and services.
  • Help biopharma companies focus more on your rare disease.
  • Earn rewards for participating in interviews and surveys.

What are you waiting for? Sign up now!

Providing patients and caregivers a voice

Rare Patient Voice Canada was formed to provide Canadian patients with rare diseases and their caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services.

RPV began in the USA in 2013. Since then, more than 50,000 patients have signed up to share their opinions and experiences. Now, Canadians with rare diseases can also provide their input and ideas about the development of products and services to help them live with their conditions